Cameron a 15 year old with Crohn’s Disease

Hi, My name is Cameron.

I’m a 10th grade kid who just happens to have Crohn’s disease.  This all began six years ago-about the time I was in 4th grade. I had always been a pretty healthy kid and very active. I played sports, swam, surfed, golfed and traveled a lot with my family.

Then one day out of now where I got sick, like very sick.  At first the Dr. said it was a virus and would run its course.    At this point I had lost a total of 24 pounds.  I was now very sick.  I could no longer play sports.  It was such a task just to get up out of bed.

My Dr. was at a loss and sent me to a Pediatric Gastroenterologist (a special Dr that knows about the digestive system).  I went through a whole lot of tests, including blood work, a colonoscopy and endoscopy and I had to drink this really disgusting white stuff for X-rays.  We finally got a diagnosis: CROHN’S DISEASE!

I was so depressed! I was so tired of being sick.  I hated getting IV’s and having to have weekly blood draws.  I knew before, but really knew now that my life would never be the same again. I had lost my freedom and the rights to just be a kid.

I use to take pills every day. This continued for a few years until I was finally taking 16 pills a day.  I still didn’t want to eat much but things kind of got better.   Then in October 2012 things changed again.  I was sick, failure to thrive.  I was not growing, losing weight again and no appetite.  I had to have another colonoscopy/endoscopy. My results were not much different than 6 years before.  My Dr. took me off of oral meds and I began infusions-Remicaid.

On March 17, 2013 I rushed to the hospital.  It was my very first time.  My life as I had grown to accept was going to change in a very big way-AGAIN! It went in a direction I could have I never had imagined. I had a perforation of my intestines.  Surgical result: removal of 1/3 of my colon, 15cm of small intestines and a temporary Ileostomy. I’m happy to say that in June I had surgery again-this time to remove the ileostomy and reattach my intestines. I am back together and feeling great.

I continue to have a pretty normal childhood.  I so wished I didn’t have Crohn’s but I do.  I deal with it the best I can with the support of my family, friends and my Dr’s. I know there are people out there that have it worse than me.

Cameron is treated at an ImproveCareNow center.

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