Jamie and her son with Crohn’s Disease


In August 2008 our son was admitted to the hospital for a colonoscopy. He was 4 years old.  He had been struggling with symptoms for many months; yet when the doctor told us out son had Crohn’s Disease, I found myself literally unable to stand up.

I am certain all I heard was the word disease.  He was 4!  He was too young!  The doctors were mistaken.  As it turns out, they were not mistaken.

That was 5 years ago.  Over the last 5 years, we have experienced a lot:  new medical terms, IVs, pills, doctor visits, blood draws, educating schools, looking for bathrooms in all sorts of places, learning to keep a change of clothes in the car, and soaking up any and all information we could find about Crohn’s Disease.

But that’s only part of the story!  The rest of our story is, over the last 5 years we have also experienced: vacations to Sea World, new school years, soccer games, flag football, basketball tournaments, learning to ride a bike, chess club, birthday parties, and a week at summer camp!

While Crohn’s Disease continues to be part of our son’s life; his life (and ours) is so much more than this disease.


Jamie’s son is treated at an ImproveCareNow center.

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