Stacy and her son with Crohn’s Disease

My son is 13 and has Crohn’s Disease.  The diagnosis when he was 2 years old was scary, and he and our family have experienced many health related difficulties over the years.

Along the way, through my involvement with different communities of those affected by this disease, I have connected with incredible people, parents of kids with the disease, and kids and adults of all ages. Friends I would have never met otherwise, stories I would have never been told, and countless moments of insight and inspiration I would have never been able to be a part of-this has been my journey.

The strength I see in the children I have met amazes me, mostly because they just want to be kids and will fight through the bad days and difficult times to go to school, participate in their activities-basketball game, dance recital, etc., and to hang out with their friends.

Of course we face many challenges and have endured periods of medical uncertainty. But I know for sure that my son’s strength and perseverance has pushed me and our family to understand others and their struggles in a deeper way, to step outside of our own comfort zones to reach others, and push forward towards helping improve the lives of all those living with Crohn’s or Colitis every day. One thing I would never trade is the people I have met, and the experiences I have had. I know you will find unexpected sources of inspiration and compassion as you travel down this road.


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