Our next generation of leaders

Our next generation of leaders

By: Julia Ament-Cox

Since the day of your child’s diagnosis, I’ll bet volunteering, fundraising and public speaking was the farthest thing from you and your kids’ minds. It’s overwhelming enough facing each day with all the challenges that arise living with a child with any chronic illness. The way children react to the diagnosis of a chronic illness depends on several factors, including the child’s personality, the specific illness, and their family. Volunteering feels good, and lets kids know that they can make a difference.  Involvement in service to others brings out their sense of self worth, giving them the understanding that they do have something to contribute to society.

I found this quote and as I read it, it really defined four brave kids that found a way to take their experiences and positive attitudes and teach the world some social responsibility.

“Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.”

Amy B. Scher

Kolin, Tyler, Cameron and Kathryn are our next generation of leaders! They inspire a spirit of empathy and social responsibility in which they are helping to create a culture of generosity and civic responsibility.  They all suffer from a chronic illness but their positive attitude resonates in everything they do. These four have discovered their own strengths and qualities and have used this to bring awareness to Crohn’s and Colitis and help others as well.


Over the past 10 years, Kolin has tried to raise awareness everyday and everywhere he goes.  He has spoken in front of many groups whether to raise money for CCFA or just to teach others what it is like to have an IBD.  Kolin believes that everyone that hears his voice and reads his story helps to get one step closer to finding a cure.


Over the past few years, Tyler has had the honor of volunteering with some amazing people with various organizations supporting Crohn’s & Colitis, such as CCFA and Improve Care Now. His passion to find a cure is the driving force behind him starting a fundraiser to raise awareness and funding for research. In June of 2013, Tyler was grateful to be invited to Washington, D.C. as a Jefferson Award winner for his community service work for those suffering with Crohn’s Disease or Ulcerative Colitis.


Cameron is very grateful to have had many opportunities to volunteer and public speak to help bring attention to Crohn’s and Colitis. Cameron has had the honor to speak in front of the Oviedo Rotary Club, TeamChallenge events, TakeSteps meetings and Leavitt Family-CCFA Crystal Ball.  In addition to awareness of his disease, he takes all opportunities to share his positive attitude by speaking about his story. He feels inspired and empowered by his volunteering work.


Kathryn was recognized by her hospital for her very thoughtful gesture. She made more than 1,000 bracelets to raised funds to buy iPads, books, care kits and other items for other patients and their families. Even as she receives regular treatments to keep her condition under control, she always thinks of others in the same situation.  Her story was featured on Levine Children’s Hospital FaceBook page on May 12th.

Kids really do make the world a better place.

If you know of a kid that has stepped up to help and bring awareness,  we would love you to email us their story.

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