Resources for Cystic Fibrosis Patients

Links to Websites for Cystic Fibrosis Patients and Caregivers

Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

Smart Patients

Smart Patients is an online community where patients and caregivers learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience.

Boomer Esiason Foundation

The Boomer Esiason Foundation’s staff is comprised of individuals with expertise in cystic fibrosis and program development, event planning and fundraising, marketing and communications, and management.

CF Living

CF Living is a set with information for the newly diagnosed including patient stories nutrition and disease management.

Cystic Fibrosis Trust

We are the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. – See more at: http://www.cysticfibrosis.org.uk/who-we-are#sthash.iCDYvFzK.dpuf

Cystic Fibrosis Research

Cystic Fibrosis Research, Inc. exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.

CFTR2

CFTR2 is a website designed to provide information about specific cystic fibrosis (CF) mutations to patients, researchers, and the general public.

Disclaimers

Empowered By Kids, Inc. is a registered non-profit organization under Internal Revenue Code 501(c)(3). All contributions made to Empowered By Kids are tax deductible for those living in the United States.