Resources For IBD

Resources for Inflammatory Bowel Disease Patients

ImproveCareNow (ICN)

ImproveCareNow is a group of healthcare providers, patients, and families dedicated to improving the quality of care provided to children and adolescents with IBD. ImproveCareNow has combined the experience of 30 centers across the country and made it possible for healthcare professionals, patients, and families to openly share information related to IBD for the benefit of all patients.

The information and reference materials included in this handbook are intended to be general information for the reader, and are not intended for diagnostic or treatment purposes. Please consult with your healthcare provider for any specific questions and concerns that you may have, as this information does not replace a visit with your health care team.

ImproveCareNow’s Self Management Guide for Patients and Families

 C3N project

The C3N Project – where C3N stands for Collaborative Chronic Care Network – is an innovation lab, where patients, clinicians and researchers work together as co-designers that aim to transform the health system of chronic illness care.

The Children’s Digestive Health and Nutrition Foundation (CDHNF)

The Childrens Digestive Health and Nutrition Foundation (CDHNF) is one of the leading providers of information on pediatric gastrointestinal, liver and nutritional issues, with a primary goal to improve the treatment and management of gastrointestinal diseases in children.

Starlight Starbright Programs

Serving more than 180,000 children each month, Starlight Starbright offers a comprehensive menu of ongoing support for children and families before, during and after medical treatment. Starbright World is an online social network for teens with serious medical conditions such as IBD. It allows you to connect with other teens and share stories, provide advice, or just vent.

National Digestive Diseases Information Clearinghouse (NDDIC) National Institutes of Health Crohn’s Disease | Ulcerative Colitis

The National Digestive Diseases Information Clearinghouse (NDDIC) was established in 1980 to increase knowledge and understanding about digestive diseases among people with these conditions and their families, health care professionals, and the general public.

IBD University (IBDU)

IBD University is a great resource for tips and information as you transition from pediatric care to adult care. It includes basic information about IBD, insurance questions, information about nutrition and daily living. This website can definitely help you  go from graduate to independence.

My IBD

MyIBD.org is published by the Foundation for Clinical Research in IBD. The Foundation is a nonprofit organization, incorporated in the state of New York as a 501(c)(3), and governed by a volunteer Board of Trustees. (Copied word for word from website)

Crohn’s and Colitis Foundation of America (CCFA)

The Crohn’s and Colitis Foundation of America is a non-profit organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis in children and adults.

www.ucandcrohns.org

The CCFA has recently created this website specifically for teens living with IBD. It includes general information about IBD, and allows you to connect with other teens who share their stories and experiences.

Crohnology

Patient centered network focused on IBD

Ally’s Law, Bathroom access act

Girls with Guts

The mission of Girls With Guts is to empower girls and women with Inflammatory Bowel Disease (Crohn’s Disease & Ulcerative colitis) and ostomies to share their stories of confidence and to promote self-esteem.

Life, Lemons & Lemonade

Great blog showing the life of Leah, an IBD champion.

www.thecrohnsjourneyfoundation.org
www.thegreatbowelmovement.org

Disclaimers

Empowered By Kids, Inc. is a registered non-profit organization under Internal Revenue Code 501(c)(3). All contributions made to Empowered By Kids are tax deductible for those living in the United States.